State COVID-19 cancer registry launches
Are cancer patients in Washington state facing treatment delays? Has COVID-19 made health disparities worse in our state?
Fred Hutch public health researchers just received funding to drill down into patient data to assess the impact of the COVID-19 pandemic on the health of Washington state citizens, particularly its cancer patients and underserved populations.
Launched with a $1 million grant from Andy Hill CARE Fund, a Washington state cancer research endowment, Hutch data scientists and epidemiologists will utilize surveys, cancer registries, insurance claims and other data to track the care, outcomes and experiences of cancer patients with COVID-19 as well as assess the pandemic’s impact on cancer screening, cancer care and follow-up in both cancer and non-cancer patients.
Announced last month, the newly established Washington State COVID-19 and Cancer Research Repository is a collaboration between Fred Hutch, the MultiCare Institute for Research & Innovation and the Community Cancer Fund.
Co-investigators for the project include Dr. Scott Ramsey, director of HICOR, the Hutchinson Institute for Cancer Outcomes Research; Dr. Margaret Madeleine in the Hutch’s Epidemiology Program; and Dr. Jay Mendoza, head of the Office of Community Outreach & Engagement, or OCOE.
“Our community partners who focus on underserved populations report many of these people hold essential worker positions and face substantial barriers to safe social distancing,” said Mendoza, who along with OCOE, will lead a survey of Washington state’s general population. “They may also lack personal protective equipment or suffer from food and housing insecurity. These factors, coupled with longstanding structural inequities in health care, have created serious disruptions in cancer screening and cancer care.”
Studies have already shown that African Americans, Latinx populations, Indigenous people and other groups have been disproportionately affected by the pandemic. The new registry will focus particularly on minority patients, those from lower socioeconomic backgrounds and those living in rural areas.
Researchers will survey a representative sample of both cancer patients and the general population to compare outcomes, treatments and disparities in pandemic care or screening; analyze COVID-19 outcomes based on cancer site, tumor characteristics and time since diagnosis; and identify communities with the highest concentrations of COVID-19 and cancer. They will also identify disease clusters throughout the state and examine neighborhood level factors that impact COVID-19 risk.
“This project will provide comprehensive, state-level data on the impact of COVID-19 on cancer patients and the care that they receive,” said Mendoza. “It will also track the impact of the pandemic on access to cancer care, cancer screening and follow-up — in both cancer and non-cancer patients in our state.”
Data from the repository will be available as a web-based tool for researchers and research organizations in Washington state and nationally.
Tracking COVID-19’s prevalence in our state
Also just launched, a new serological survey designed to determine just how prevalent the COVID-19 outbreak has been in Washington. A serology test shows whether a person has developed antibodies to an infection, such as COVID-19. Scientists are still working to establish whether humans develop antibodies in response to this new infection and if so, how long they last.
Headed by Hutch and University of Washington virologist Dr. Keith Jerome, the project will enroll, gather data and follow 7,000 people, selected via the state’s census.
Willing participants will receive one diagnostic and three antibody tests over the course of eight months. UW Medicine and its field agents will conduct the tests (serology tests are done through blood while diagnostic tests involve a nasal swab).
Jerome said he hopes the testing will start by the end of July, with initial results on COVID-19’s actual prevalence in the state expected in the fall. Researchers hope the study will also shed light on health disparities as well as show the overall effectiveness of antibodies to this new infection.