Sarcoma Surveillance and Survivorship

At Fred Hutchinson Cancer Center, we understand that surveillance and survivorship are equally important as cancer treatment for our patients. Our Sarcoma Surveillance Clinic and Sarcoma Survivorship Clinic offer post-treatment care specific to your needs by providers who specialize in sarcoma surveillance and survivorship. 

Sarcoma Surveillance Clinic

The Fred Hutch Sarcoma Surveillance Clinic offer resources and monitoring for patients who have completed their sarcoma treatment. This includes routine follow-up exams and scan review, which is important in order to detect possible early signs of sarcoma recurrence or metastatic disease. The frequency of your visits will depend on your surveillance plan.

Who is this Clinic For?

The Sarcoma Surveillance Clinic is designed for patients who have completed treatment for sarcoma. The frequency of your visits will depend on your surveillance plan.

If You Are a Current Fred Hutch Patient

The Sarcoma Surveillance Clinic is available to Fred Hutch sarcoma patients who are transitioning to surveillance.

If You Are Not a Current Fred Hutch Patient

Patients wanting to transfer their care would first be scheduled at our Sarcoma Clinic and then subsequently referred to the Sarcoma Surveillance Clinic.

What to Expect

The Sarcoma Surveillance clinic is tailored to meet individual patients’ needs and offers the following services:

  • Surveillance planning
  • Routine imaging and clinic follow-up
  • Management of long-term side effects of cancer treatment
  • Referrals to specialists or supportive care services, as needed

Supportive care services include integrative medicine, which includes acupuncture, as well as many other services such as psychiatry and nutrition. 

Learn more about Supportive Care Services

How to Find Us

The Surveillance Clinic is located in the Fred Hutch Wellness Center. You can expect the same type of visit as in the fourth floor Sarcoma Clinic. For directions and other information on the Wellness Center.

“Seeing patients in the Surveillance Clinic is exciting because it represents that they have graduated from the active treatment phase and higher-risk period of follow up. The emphasis is geared toward getting back to life and health after cancer. ”

— Jennifer S. Hamilton, PA-C

Sarcoma Survivorship Clinic

The time after cancer treatment can be confusing as you adjust to your new normal. To help patients with this transition, we created the survivorship clinic. This is a one-time clinic visit where patients can chat with a sarcoma specialist about supporting health after sarcoma treatment, returning to physical activities and learning about possible late effects of sarcoma treatment.

Who is this Clinic For?

If You Are a Current Fred Hutch Patient

The Sarcoma Survivorship Clinic is available to Fred Hutch sarcoma patients who are transitioning to survivorship.

If You Are Not a Current Fred Hutch Patient

Patients who are seeking a one-time survivorship visit to receive a care plan and then continue treatment with their current provider can be scheduled with the Sarcoma Survivorship Clinic. A telehealth visit is available. Patients wanting to transfer their long-term care would first be scheduled at our Sarcoma Clinic and then subsequently referred to the Sarcoma Survivorship Clinic.

What to Expect

Your survivorship visit may cover the following topics:

  • Discuss possible late effects of your treatment and what to watch for
  • Recommendations to manage long-term symptoms of your treatment
  • Guidelines on screening that your primary care provider or local provider can reference.
    • Your treatment summary and care plan will be shared with your local provider.
  • Optional nutrition consultation with a Fred Hutch registered dietitian

Your Sarcoma Surveillance and Survivorship Clinic Care Team

Meet the caring, dedicated people who take care of you and your family at Fred Hutch.

Care Team

The Sarcoma Surveillance and Survivorship Clinic team is made up of experts from a variety of specialties within Fred Hutch.

Advanced Practice Provider

These health care professionals work closely with you on your surveillance plan. There are two types: physician assistants (PAs) and advanced registered nurse practitioners (ARNPs). They will be your main provider in the Surveillance Clinic.

Registered Nurse (RN)

These health care professionals work closely with your advanced care provider. Nurses are resources for you and your caregiver. They answer questions and help with a wide range of topics, such as connecting you with services you need at Fred Hutch.

Team Coordinator

Your team coordinator works closely with you and your advanced care provider. They serve as your scheduler.

Resources and Support Group

Explore resources and support groups that are geared towards individuals who have had sarcoma and their families.

GIST Support

GIST (Gastrointestinal Stromal Tumor) Support International is a volunteer organization that promotes educational activities and accepts contributions to support development of patient education programs with the hope that they will be useful to others dealing with this disease.

Leiomyosarcoma Support & Direct Research Foundation

The Leiomyosarcoma Support & Direct Research Foundation’s mission is to empower patients with information and support, fund groundbreaking LMS research and provide a bridge between patients and researchers to collaborate on finding a cure.

National Leiomyosarcoma Foundation

The National Leiomyosarcoma Foundation is an organization that strives to gather a patients, scientists, patient advocates and physicians to learn more about this rare disease. Within the NLMSF, the LMS Research Roundtable organizes leading-edge research in this area and strives to innovate the ways that this disease is treated.

The EHE Foundation

The EHE (Epithelioid Hemangioendothelioma) Foundation, founded in 2015, is a nonprofit 501c3 organization dedicated to pursuing effective treatment for EHE and supporting EHE patients and their families.

The Life Raft Group

The Life Raft Group’s mission is to enhance the survival and quality of life for people living with GIST through patient-powered research, education and empowerment and global advocacy efforts.